There are many organisations and resources aimed at helping those with eczema and related conditions and we have listed some of their websites here.
Patient Organisations and Charities:
Nottingham Support Group for Carers of Children with Eczema
For independent patient-centred information and online support for families touched by eczema.
National Eczema Society
UK charity supporting all those affected by eczema
Eczema Outreach Support
UK charity helping children and young people with eczema
British Skin Foundation
UK charity funding research into all types of skin disease
Global Parents for Eczema Research
Parent-led non-profit organization that advances research and policy changes to help children with moderate to severe eczema
Changing Faces
UK charity supporting people living with visible differences to promote acceptance and inclusivity
Allergy UK
UK charity supporting people with allergies
Asthma UK
UK charity supporting people living with asthma and lung conditions
Eczema Care:
Eczema Care Online (ECO)
Online toolkit dedicated to caring for eczema
NHS Atopic Eczema
Overview of Atopic Eczema from the NHS
Health Talk
Videos from young people living with eczema
NICE Guidelines: Atopic Eczema in under 12s
Guidelines for diagnosis and management of eczema in u12s
Eczema Written Action Plan
For use by parents or carers to help them manage their child’s eczema
Patient Oriented Eczema Measure (POEM)
A tool used for monitoring atopic eczema severity
My Eczema Tracker
Phone app that tracks eczema symptoms and eczema control
Recap of atopic eczema (RECAP)
Questionnaire designed to capture the experience of eczema control in all ages and eczema severities.
British Association of Dermatologist (BAD) Patient Hub
Website from the BAD for patient advice and information on living with a skin condition
The Dragon In My Skin
This resource encompasses a children’s book, animation, song and teacher pack, all designed to help improve teaching around eczema.
Professional Bodies:
British Association of Dermatologists (BAD)
Professional membership body for UK dermatologists.
British Dermatological Nursing Group (BDNG)
Independent speciality group of nurses and healthcare professionals with an interest in dermatology.
Research:
Centre of Evidence Based Dermatology (CEBD)
Independent research centre at the University of Nottingham researching skin disease treatment and prevention
UK Dermatology Clinical Trials Network (UKDCTN)
Collaborative network of dermatology health care professionals and patients
Be Part of Research
Website from the National Institute for Health and Care Research listing health and social care research taking place in the UK