How can I get involved in Rapid Eczema Trials?

There are lots of different ways you can get involved in this exciting research programme. The first step is to sign up for the newsletter and you’ll then receive monthly emails with all the latest news and updates on ways to get involved.

It is up to you how involved you get in Rapid Eczema Trials but some examples are:

    • taking part in surveys to help with deciding what eczema research should be done and to help design the research
    • sharing information and letting other people with eczema know about Rapid Eczema Trials
    • joining a co-production group to help design a study
    • joining a co-production group to help us get information about eczema out to people who need it
    • taking part in one of the Rapid Eczema Trials studies
Can I talk to someone to find out more about Rapid Eczema Trials?

Yes – we hold monthly drop-in sessions which are usually on the second Tuesday of each month 6-7pm. These are very informal and held online. Amanda Roberts (an eczema patient) will tell you more about the project so you can see if getting involved is right for you. Let us know if you’d like to join one of these sessions. You can also ring us on 0115 8468631 to speak to one of the research team or email us and someone will get back to you within a few days to answer your questions.

I’ve never done anything like this before – does that matter?

No, it doesn’t matter at all. The only experience you need to get involved in Rapid Eczema Trials is either having eczema yourself or looking after someone (eg your child) who has eczema.

Can I get involved in Rapid Eczema Trials if I don’t have eczema?

We’re sorry, but you can only get involved if you either have eczema yourself or have experience of looking after someone (eg your child) who has eczema. If you are affected by another skin condition and are keen to get more involved in supporting research development, please think about getting involved in this dermatology patient panel.

Why should I get involved in Rapid Eczema Trials?

The benefits of getting involved include:

    • sharing your experiences of eczema in a positive way with others in similar situations
    • actively taking part in something that could help improve eczema management for lots of people
    • gaining new skills and understanding about research and eczema.
I’m a bit confused about what getting involved in research means? Where can I find out some more information about this?

You can find some more information about getting involved in research on the National Institute for Health and Social Care Research website (this is the research part of the NHS and the organisation that has funded Rapid Eczema Trials).

You can also read about the experiences of some people who have been in Rapid Eczema Trials already.

Will I get paid for getting involved in Rapid Eczema Trials?

It depends on how you’re getting involved. We don’t provide payment for things such as taking part in surveys, but we do for those who get more involved eg joining a co-production group to help design a study. All payments are made in line with guidance from the funder. Please get in touch to find out more about our payments policy.

What sort of studies are you doing as part of Rapid Eczema Trials?

The research studies will all be done online (without the need to visit a GP or hospital to take part) so will look at ways of managing eczema rather than testing new drugs and treatments.

I want to take part in other clinical trials – how can I find out about these?

There is a really useful website called Be Part of Research which will let you search for other studies and clinical trials.

Where can I get help and support about treating my eczema?

We’re really sorry but we can’t give help or information about treating your eczema. We would always recommend that people contact their GP if they are having problems.

You may also find it useful to have a look at the patient support groups and information sites listed on the eczema resources page of this website.