How will information about me be used?
Researchers at the Nottingham Clinical Trials Unit will need to use information from you for this research project. The Nottingham Clinical Trials Unit is part of the University of Nottingham.
This information will include your name and contact details. The researchers will use this information to do the research. It is also used to check that the research is being done properly.
People who do not need to know who you are will not be able to see your name or contact details. Your data will have a code number instead.
All information about you will be kept safe and secure.
If you give us permission to, we will share your name and telephone number with Esendex, our text messaging provider and their sub processors. They will use this information to send you text message reminders about the study questionnaires whilst you are taking part in the study. Esendex will keep the information shared with them for two years or until the end of the RAPID Eczema Trials Project (whichever occurs first) before it is destroyed.
After the study ends, some of the data will be kept so the results can be checked. You will also be informed about the study results. Reports will not provide information about individual participants. It will not be possible to work out that you took part.
We will share some of the data publicly including with the eczema community, but it will not be possible to tell who has taken part. This sharing is important to open science to the public and let others use our data to help stop research waste.
What are your choices about how your information is used?
You can stop being part of the study at any time, without giving a reason, but we will keep information about you that we already have.
We need to manage your records in specific ways for the research to be reliable. This means that we won’t be able to let you see or change the data we hold about you.
After 5 years your data collected during the study will be disposed of securely.
Where can you find about more about how your information is used?
You can find out more about how we use your information at:
- www.hra.nhs.uk/information-about-patients/ and www.hra.nhs.uk/patientdataandresearch
- or by sending an email to RapidEczemaTrials@nottingham.ac.uk